I have decided to call bullshit on the Hollywood films’ versions of cancer. I don’t watch every movie that has ever been made but in my experience the main character has a happy life until some doctor shows up diagnosing them with cancer. That character is shown shortly after sitting in a room surrounded by other bald patients who are not only receiving chemo but look miserable in the process. That night the main character is shown getting out of bed and throwing up while their significant other stays peacefully asleep. Again, I call bullshit.
I had no idea what I was getting into or what to expect a month ago when I was diagnosed so the only reference I had were from film portrayals. I couldn’t have been more off track. The first few weeks of being in the hospital are boring and uneventful. When I needed chemo the nurse hooked up my port in my chest to my IV pole that held the treatment and that was it. The symptoms of chemo don’t even show up until a couple of days later so I felt perfectly fine the first week being inpatient. Basically, for the first couple of weeks I was just waiting for the drugs to make me sick and miserable. Which is also bullshit by the way because when you have cancer you have to get sicker and sicker and sicker before you get better. Anyway, the first treatment wasn’t terrible because the only side effect I had was jaw pain three days later. The second was worse, bringing new symptoms that are super totally funtastic but what really sucked was the third treatment where all the pain, nausea, and cancer really hit me.
Moving on, the movies also seem to skim over how much time is spent in the hospital. I was inpatient for 30 days and thought everything was in the clear and I didn’t have to go back for a full week when I would receive another round of chemo BUT NOooOO my body decided to put me back for three days because of complications. I feel like the hospital is more my home than my actual house. I am friends with different nurses and staff that I see walking around, I know the weekly soup schedule by heart, and I can successfully navigate the back corrals of children’s to get to the staff elevators. Movies leave out these huge parts because to a story line it might not matter, but as a cancer patient I can say that the time waiting for orders, for results. or even for food are the most important. These small moments are what have determined how comfortable my treatment is and the type actions I can take to make the next year of my life mean something more than “the year I had cancer”.
I’m not saying all films that depict cancer treatments are unreliable because I haven’t seen every film shown, but I want people top know that there is more to cancer than going bald and getting sick. It is creating meaningful relationships with nurses and doctors. It is feeling pain in every joint and not being able to sit up yourself without help. It is taking 12 pills each morning and each night knowing that you are willingly poisoning yourself so that all the cancer cells are cleared out. Cancer is seeing kids wait with anticipation for the play room to open but it is also seeing kids that can’t leave their room for fear of infection. It is miracles and it is devastation. Cancer is whatever you think it is, but one fact is always true; cancer is stupid.
Katie, this is such a great description of the ” real” stupid Cancer. Until visiting you, I had no idea what patients and their families endure. My respect runs deep to the core for everyone who is and has dealt with Cancer. I love you tough girl!!
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Thanks for giving me the courage to think beyond the balding, the throwing up, the invasion of the body under chemo and what we have come to believe is the cancer struggle, to become more aware of cancer treatment using your body as a pawn until you have played the game to its satisfaction, and the small joyless and constant moments of waiting which you described as filling your days. I wish and pray for you and your family to survive and thrive at the close of this ordeal.
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I am much older and have seen lots of “Hollywood” about what they depict life to be. I can say after working at, well you know. Nothing depicts the way cancer truly is except seeing it first hand, and that’s nothing in comparison to the reality that only those who have it understand. I only understand what I feel being a son whose mother had cancer, and what I see every day here. The one thing I do know is You Katie and the other younglings here are truly an inspiration to us here. You are all truly wonderful.
I agree, Cancer is Stupid
PL&FC
Officer John
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stay strong !
Continued prayers for you.
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Katie – I just talked to your Dad earlier this morning and he updated me on how you are doing. He told me about your blog so I thought I’d check it out.
I have known so many people with cancer over the years and have gotten very close to it in my family. I am grateful for your perspective and how openly you are sharing about everything.
I have been praying for you since your Mom first told me about what was happening. Many things about life just aren’t fair and your situation is certainly one of them. Know that I pray for you each and every morning.
Deacon Dave
Your neighbor
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hey
dear katie your spirit and perseverance to beat the “devil” is just amazing.
but also your realistic vision is courageous and admirable
keep the faith
grts Gunther
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You are amazing KT
Miss yo face in the dung baby girl!!
FYI you have been under “superstar of the week” for a month now and no one dares to change it
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